I received an e-mail last week about the need for participants for a study looking at a new endometriosis drug. This is what I was sent (from the Reproductive Endocrine Unit at Massachusetts General Hospital), with a request for me to post the information here for all of you:
I am searching to find ways to notify women with endometriosis that MGH will be conducting an investigational research study for female subjects between 18 and 40 that have moderate to severe endometriosis and who are eligible under the study criteria. The study involves an investigational medication and up to 43 study visits over approximately 10 months. All study related procedures will be at no cost. Study eligible participants may receive up to $2,150 for reimbursement of their time and travel. For Additional Information or to schedule an appointment call: 617-643-2807.
Just for the record, I responded to the e-mail requesting more information and still haven't heard anything back. I also called the number myself yesterday, hoping to find out what the criteria was and a little more about what the study will actually consist of. I still haven't heard back from that either, although to be fair - I did call at what was probably past business hours in Massachusetts.
I just want to be clear though that I know no more than what I've posted here, and I am not in any way encouraging anyone to sign up. If you are interested in participating, call the number and see what you can find out. But do some research. I am all about finding a cure for endometriosis, but I would hate to be responsible for anyone signing up for anything that could actually harm them.
So again, I am not endorsing this!
I am however, trying to find out more information for myself as well. I highly doubt they would want me (seeing as I'm about as far away as I could possibly be) but if it turns out that they have something that may sound promising - well, let's just say that I'm not totally opposed to being a guinea pig.
After all, sometimes these studies are on to something years before the FDA approves the new drugs.
Sometimes they do actually end up being a miracle for the people who participate in them.
And in the war against endometriosis, sometimes a few risks have to be taken.
Mostly though, I am just beyond pleased to hear of any new research going on at all. I love to think that there are people out there tirelessly searching for a cure for this disease. And I truly am willing to do just about anything I can to help.
Plus, I was kind of honored that they would think to ask me to help spread the news!
So if you are an endometriosis sufferer who is even the slightest bit interested, please do make that call and see what they're all about. If you wind up learning anything new that you wanted to pass along to me, I would love to know more.
We're all in this together ladies, and it's nice to know that there are some scientists out there on our side as well.
Keep up the good fight.
One day, there WILL be a way to beat this disease.
I promise you that.
ADSPACE
